The report by Healthwatch Kingston explores the lived experiences of people affected by Chronic Fatigue Syndrome (ME) and Fibromyalgia. It highlights significant challenges in accessing timely diagnosis, appropriate treatment, and ongoing care. Respondents frequently reported a lack of understanding from healthcare professionals, long waiting times for specialist referrals, and inconsistent treatment approaches.
The report highlights concerns regarding mental health impacts, social isolation, and difficulties navigating support systems. Additionally, it emphasises inequalities in accessing care, particularly for individuals from marginalised backgrounds or those with coexisting conditions.
Key recommendations include improving healthcare professional training to enhance understanding of these conditions, ensuring clearer diagnostic pathways, and increasing access to holistic care models that address both physical and mental well-being.
The report calls for strengthened communication between services to improve patient outcomes. Overall, the findings stress the urgent need for a more coordinated and compassionate approach to supporting those living with Chronic Fatigue Syndrome (ME) and Fibromyalgia.
Visit Healthwatch Kingston to read this report Return to the Insight Bank